View Single Post
  #4  
Old Thu Jun 5, 2008, 04:47 PM
Ruth Cuadra Ruth Cuadra is offline
Administrator
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Bill.

Welcome to Marrowforums and thanks for posting such a detailed summary of your experience. I could have written your story of feeling gradually weaker while trying to keep with regular life. When I was diagnosed with AA in 1996, I had no idea I was sick but looking back I could see that I was having problems that I didn't recognize as serious symptoms. There's an important lesson for all of us to listen to our bodies and get help when things seem "off".

I second ccartbmw's positive comments about Dr. Paquette. I know other patients who are very glad to have him caring for them, too. I've heard him lecture about AA, MDS, and transplantation, and watched how he interacts with patients at conferences where I can see his calmness, willingness to explain, and genuine concern for people's well-being.

I can't help with the decision about the Sirolimus trial but I so admire your willingness to risk participating for the sake of advancing the study.

Thanks for joining us.

Ruth Cuadra
__________________
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote