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Hi Beth, when you were nursing, were you aware it was this difficult to get medical personnel to listen to patients and/or their carers?
I certainly didn't. Being on this side of the fence has opened my eyes to the communication and other problems.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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