Thread: Clinical Trial
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  #5  
Old Mon Aug 19, 2013, 11:10 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by vikasgoyal View Post
He is taking wheatgrass which helped him reduce his ferritin from 2500 to 750 in couple of months. I hope this trend continues. He got his BMB done twice and they confirmed MDS RCMD everytime. One of the doctors told us that for non del 5q cases revlimid might work for only about 20% of the cases. Is that true?

Secondly, is clinical trial a good option if he can be accepted in US?
Clinical trials are all listed at:

www.clinicaltrials.gov

See is any fit.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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