Update 1 John's MDS RAEB-1
Our appointment in MN at the transplant facility was very somber. His prognosis: 1 year. His brother and sister were tested as possible donors. They will contact us Tuesday to let us know what the game plan is. His blood shows 5% blasts and he is transfusing as I write this. He can't go more than 5 days without needing blood. His levels decrease to 7.2 before they even think of transfusing him. Today his number was 7.4, but with the weekend upon us they chose to give him two bags. We are all scared and trying to figure out our expenses and job situations. My work only offers 12 weeks of fmla---so I will have to choose between being with my husband and working to keep my job and our insurance. Thanks to everyone who has commented. We both feel very welcome here.
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Tina, wife of John age 37, he was diagnosed with MDS RAEB November 13th 2014. We are here to learn, find support, and keep in touch with others in our positions
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