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NPlate for SAA
Hi, All,
I've been around the block the past year with diagnoses of MDS, PNH and now SAA. Because my BMB shows that I am producing no platelets, my doctor would like me to begin NPlate. I've been browsing through the forums (thank you, everyone, for your inputs) I can't find much about success with NPlate for those of us in the MDS grouping. I get a little nervous reading the data that says don't use for MDS. Any comments or suggestions of where to look?
At the moment I receive platelet transfusions every 10 days or so when platelet count goes to 10 or lower. Other transfusions are every 2 weeks, when HGB gets to 8 or lower. I've got bruises that would suggest I fell off a truck but no bleeding. Current drug regimen is Aranesp biweekly, Soliris biweekly and Cyclosporine (hate the side effects) twice a day.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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