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Old Fri Sep 26, 2014, 02:09 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
GVHD after PNH trans

I had an allo mud mini trans 2.5 yrs ago for PNH. No AA or any other disease. My GVHD has not been very severe compared to some pics that I've seen. I was told by the trans co-ord nurse that my match was as good as they were going to get. But I've also been told that GVHD is hit or miss regardless. Obviously having good med ppl treating you helps as well. Some peeps have basically no GVH, and I've been told that most dr's actually like to see a little bit of GVHD. I have some minor skin rash, dry eyes, a few slightly more severe rash spots that left small scars, but nothing too severe. It beats the alternative!!! I had some episodes b4 I was diagnosed where I shld have been hosp, so I was all abt getting treated/cured asap. Good luck to evryone
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