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Old Tue Jul 28, 2015, 09:58 AM
misterno misterno is offline
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Join Date: Jul 2015
Posts: 3
Mom is 75 years old and has myelofibrosis

So she lives overseas, and yesterday I got an email response from her doctor

By the way, my mom receives blood routinely. If she does not, she claims she feels very weak and not good.

Summary of doctor's email
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We are planning any overlap for your mom, your mom is chronic myelofibrosis

Even in the young patients, bone marrow transplant is not a permanent fix. Your mom is 75 so transplant is not a good idea. A little bit younger patients
can have this transplant called RIC which is less dense transplantation. But this will not be suitable for your mom

I decided to give her pills of talidomid and prednol sometime ago. I was trying to reduce the need for blood transfer but the 3 months of treatment did not work.

So we took another sample (she does not say sample of what) and realized she has grade 4 myelofibrosis that is why her spleen has been getting bigger.

So as a last resort we decided that Jakavi (ruxolitinib) is the way to go.
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In the country she is in, Jakavi is not for sale, so I guess she is relying on me to buy it and send to her.

So what do you guys think about the above email?
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