[Sue&Dave]

Does anyone know for a fact how often the registry is searched once a formal search has begun? We were told by the transplant team that if the initial search does not turn up a donor, the chances of finding one are pretty slim. I know that a preliminary search was started last year at one Center of Excellence, and I am pretty sure a formal search was started at our current center MSKCC. But how often does the search occur? Is it an automatic crawl of the web every so often or does it require someone to manually comb the results? Just wondering if perhaps a donor has joined in the past 12 months or so and because we have decided to hold off on a cord-blood transplant for a while, maybe we don't even know about it?