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Hi Cindy,
We haven't talked much, but I just wanted to say how heartbreaking it is to read this. I went back and read some of the journal entries -- what a heroic journey this is for both of you.
I will pray for another miracle for Ron. I am sorry about your horrifying discussion about Hospice Care. The New Health Reform Law allows for "concurrent" medical treatment for Hospice patients, but that is not yet available. In the meantime, have you considered consulting with a palliative care specialist. Palliative care is different from Hospice in that it does not mean the end of medical treatment but like hospice does address patient quality of life.
Thinking about you both,
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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