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Sorry to hear about this problem. I am sure that it would be quite frustrating for both of you. To me, assuming all other aspects of his health are good, it sounds like he doesn't do well with a lower hemoglobin levels. I did not ever really experience this as I was able to be alright with some physical activity down to an 8, but have heard of others having trouble as high as 10. Is he blood transfusion dependent? Is he taking other drugs that may make this worse?
Also, my team of doctors was pretty responsive to these kinds of questions, so you might want to ask either with him in the room, or separate if that is more comfortable to your other half.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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