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Old Thu Mar 16, 2017, 01:20 PM
Eileen N. - CA Eileen N. - CA is offline
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Join Date: Mar 2017
Location: Foster City, CA
Posts: 3
Quote:
Originally Posted by bailie View Post
Eileen, I am sorry for the difficult diagnosis for your father. Welcome to this forum. It is a very tough decision. There are usually not significant side effects with Vidaza. The only thing I have noticed is localized redness (sunburn feeling) in the area of the shots and a tiredness for about three days following the administration. It is not as significant as what many think about "chemo". I have had 25 cycles of Vidaza. Of course everyone is different and the age of 86 makes it more difficult. The positive part of the decision is that if the Vidaza is causing problems it can be stopped at any time. Be sure to ask questions here if you have any. We wish you and your Dad the best.
Bailie-Thank you for your reply and helpful information on Vidaza. It comforts me to know side effects are minimal. May I ask which anti-nausea meds you have used, and have you taken prior to txs or after as needed? It is good to hear Vidaza has been successful for you. As of today, my dad is leaning towards supportive care only but with the info on this forum, his decision may change. He was in the US Navy, may have been exposed to chemicals on ships, and smoked for 40+ yrs, quit over 20 yrs ago. Thank you, again, for your support on this wonderful forum. Wishing you continued success with Vidaza.
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Eileen, daughter of dad age 86 dx w/MDS 3/2017. Monosomy 7, trisomy 8, deletion 7q31. Low Hg 6.5-9.3 (Jan-Feb 2017). Dr recommends Vidaza 100 mg,5 days+2 days, 21 off, 6-8 mos min. 3 rd bld transfusions in 2 mos. No tx yet.
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