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Old Wed Sep 13, 2017, 11:57 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Quote:
Originally Posted by AliceKay1 View Post
Hello. I'm 79, and I was diagnosed with high risk MDS 3 months ago. I've finished 3 cycles of Vidaza. I know very little about this disease, so I'm hoping to learn a lot from all of you.

I did go to one evening of a support group, but there was no one there with MDS. I plan to use this forum as my support group, so I hope to meet several of you soon.
Hi AliceKay,

If you can make it to Stanford on October 28th, the MDS Foundation is hosting a free MDS Patient Forum from 9:30-2:00. Dr Greenberg will be one of the guest speakers, and he is a leading expert in the disease. You will meet lots of patients with MDS and their caregivers, plus you will have an opportunity to speak to experts on treatment. Check out the "News and Events" section of this site for more information.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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