Quote:
Originally Posted by celebrations
Hi Greg,
I just looked it up.
Incredible in comparison to Lynn. 
I took 1050mg/d. Wow.
Bye
Bergit |
Hi,
It is my understanding that it isn't uncommon for ppl to take 1000 - 2000 mg/d for a response, usually lasting 2-9 months and only raising the hgl high enough to not require tx.
To say I am lucky in my response is probably an under statement, because I remember how bad it can get. I went from not being able to climb 3 steps with extreme effort or help to being as normal as I could get.
I wish that they could find out why it works so well for me and give them clues on how to help others.
Cheers,
Lynn
__________________
Lynn: 49 yrs young, Female. Dx April 2008, MDS RCMD with Myelofibrosis Gr. 3/4. Was blood transfusion dependant. Treatment: Started Valproic Acid July 11, 2008, last tx July 17, 2008. 3 yrs tx independant, normal CBC's, Life is Good.
