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Old Thu Mar 19, 2009, 07:34 PM
LindaD LindaD is offline
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Join Date: Jan 2008
Posts: 3
Very well with Dacogen in 2006

I was diagnosed with MDS in 9/2006 here at Wake-Forest. Elected not to have induction. Did very well with Dacogen and an occasional aranesep and neupogen shot. Then last summer, everything fell and hasn't really bounced back. Have had 3 bone marrows - AML about 4 mos. after initiail dx; with 30% platelets; then 3nd one in August 2008, down to 9% and but counts falling. New specialis doesn't use neupogen due to theory it latches on to blasts as it is suppose to do to 'good' cells and can promote blast growth.. Now transfusion & plat;et dependent and very depressed. Have avoided infections, (despite 0.-180ANC), but depressed with low counts. Have dr. appt. and another week of dacogen. Anyone had this type of 'run'?
LDH
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