I am an avid reader of Marrowforums but I have not yet required any treatment. As a result, I am unaware of certain aspects of this disease.
My husband just happened to see this clinical trial which is similar to the one you posted in your reply. I am not aware of how clinical trials are sanctioned, if I am even stating that correctly.
This trial is a great fit for me since it is designed for low risk MDS and it doesn't have toxic side effects. I am really interested in participating because I am hoping to stop any potential progression of my disease and alieveate the need for a BMT. I am interested in finding out if anyone knows of or is participating in this clinical trial. My MDS specialist is recommending me for this study. So, since I am Canadian, does anyone have knowledge of how a trial works in the US for a Canadian?
Female, age 52 - Diagnosed May, 2011 Hypoplastic MDS. Cytogenetics showing 2 abnormalities on chromosome 15. Blasts<5%, IPSS of 1. All blood counts low, but no treatment; watch and wait. Registered for MUD; on Feb. 23/12 two donor matches found but returned since not needed yet!