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new MDS dx
Marcus, I think I can understand a little of what you're going through. I'm 42 and recently diagnosed - going tomorrow to see a specialist to get it confirmed and talk about treatment options. I hope you'll soon include your wife and family in the discussion. I know, though, it was hard for me to say the words out loud. We still haven't told our 11 and 8 yr old boys. We plan to figure that out after we decide on a treatment approach. What type of MDS do they think you have. So far it looks like I have RAEB, type 2 (approx. 10% blasts), with trisomy 8. This stuff is all so technical, but I'm trying to learn all I can.
I thought Neil's words were very encouraging; I've been focusing on the fact that I'm relatively young and healthy, so theoretically better able to take this on.
Best of luck to you and your family. Feel free to contact me anytime. Kelly
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Kelly, age 42, recently diagnosed MDS
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