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Started Revlimid - good results
Hi all,
After 32 months on Thalidomide it started loosing effectiveness.
It had taken me from 16% blasts in April 04 to essentially no blasts until some were detected in Dec 2006. Blasts were less than 5% but dysplastic cells were seen in the BMB for the first time since starting Thal.
We started Revlimid in late Dec 06. I have had no difficulties with it, my counts after 8 weeks are the best in many months. My platelets and ANC were not affected to any extent, this seems rare but we all react differently.
All counts are above minimums. The side effects are much less than thalidomide. When I was diagnosed in Feb 2004, no drugs for MDS were available, Thalidomide was used by some; it saved my life. Now I hope to get more years out of Revlimid.
Don't ever give up and keep a positive spirit while fighting MDS.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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