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My husband had his transplant for small PNH clone w. sever aplastic anemia at Houston Methodist .. I know 3 other people who received transplants in the Houston med center all different ages one at MD Anderson w lukimia about 12 yrs and age late 60s (the other two at Houston Methodist) all are doing very very well. One had hers 10 years after having AA w lots of transfusions an I believe she's 8 yrs out
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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