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Paul, so much to identify with my experience. I was on prednisone (160 mg/day). It did affect my muscles. Also, I got diabetes from the prednisone. Fortunately, it went away when I tapered from the prednisone. My glucose numbers fluctuated greatly (from 550 crashing to 40s). I was doing insulin twice a day.
My skin GVHD was not as severe as yours and cleared up in a couple of weeks with a steroid crème. I would get it on my shoulders, then it would clear up and move to both arms, then to my legs. I couldn't feel it, so that was good.
I was on Tacrolimus so I can't give you an experience with Rituxan.
Keep up the good work!! I understand the mental part of this you are suggesting. Thank you for the update.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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