Thread: Day 82 update
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Old Sun Dec 6, 2015, 08:52 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
insulin and counts

HI - I Spoke too soon about my blood sugar - its now persistently high mostly 200 something but it has spiked higher - and I'm monitoring it and taking insulin. My hands are very dried out and sore - bottoms of my feet are painful too - presumably from GVHD - and the rash ebbs and flows but covers about 2/3 of my body in mostly reddish slightly raised rash. I got more of the cream but not sure its working other than maybe helping prevent it getting even worse. My blood counts are still low and seem to be dropping - now the WBC dropped just below normal - neutrophils still ok - my legs are pretty swollen which makes walking more difficult - trying to stay positive but Im getting nervous. i start Rituxin Tuesday... but it feels like I'm going backwards...
p
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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