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Hello Everyone,

I guess have a couple of questions I would like to ask the members of this forum. Let me start by saying, I'm so glad I found this website. I will try my best to make this short and straight to the point.

I was diagnosed in Texas with AA around the age 6. I am now 37 and have been in recovery since the age of 8 or 9. I still remember those terrifying years of constant hospital stays, blood transfusions, doctors appointments, my family being on edge and my mom and grandmother constantly crying. I have a permanent scar on my chest and neck from an Implantable port that I was so embarrassed of as a child. I believe it's called a Hickman catheter. I didn't know much as a child and now as adult, I'm digging deeper into my medical records because I feel like something could be going wrong again.

Before I voice further with my concerns. I need to list a few key facts,
My parents are of Thai Decedents but have lived in The USA since the 1960s. As a child I visited Thailand quite often. ( I'm stating because AA is more prominent is Asia.) I had bone marrow biopsy done, but never had a transplant. During the time of being sick, I never went back to visit my grandparents except when I was 8 years old and the doctors and my parents agreed that maybe this would be my last chance if they don't do it now.
I remember being horribly sick in Thailand and I was given the Blood Transfusion there and by some miracle I started improving. I don't know how it happen but I was on the road to recovery. As crazy as this may sound, because I am of the Thai decedents my family was sure that me receiving blood in Thailand from Thai People my immune system and replenished my blood cells. This was in the early 90s so I know treatments and medication is probably different now.

I have to say, given the second of chance of life, I lived it to the fullest and didn't take very good care of my self. I have been back to the doctors in years. I try to stay away at all cost because of my AA experience. The last time was 1999 when I was getting a check up before I started college.
I remembering having a very high Iron count which I read somewhere is from all the years of having blood transfusions.

Now at 37, I'm starting to feel not so great again. I recently started looking into AA and complications after recovery and couldn't find too much so I thought I would give this Forum a try. Now I have to say I'm not in the best of shape, I work mainly on the computer, I definitely don't watch what I eat or exercise. I'm a bit over weight and that maybe why I'm not feeling the best.

Unfortunately, I sort of remember this strange feeling from child hood.My main question is has anyone with childhood AA and have had a Hickman Catheter implanted and removed ever get aches and pain around where the scar is located. Either by the scar on the neck , chest, heart area or all at once??? Sometimes I have a bit of shortness of breath. I've notice this past year I've been getting these muscle aches quite often.

I recently sent for my medical records, fingers crossed they are able to find them since its been over 30 years since I was diagnose. Any advice, or comments or links to something similar that I should read would be appreciated. I;m sorry for such a long first post. Thanks again in advance.


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