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Old Mon Feb 8, 2010, 09:42 AM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Hi Wendy

Hi Wendy,

I have moderate AA with Terc mutation, and am going to try accuncture for tomorrow. I have used it in the past. Did your son take any Chinese herbs? I have some that an accupunturist friend bought me, but I'm hesistant to put anything that might be toxic into my body...Dr. Neal Young from NIH is putting me on Danazol next month, that's why I read your post. Thanks, Linda
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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