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Old Mon Oct 31, 2016, 01:26 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Data,

I am really sorry to hear about this turn of events.

If I were to take your biopsy lines out of context (meaning that I didn't know anything about you), they would read like someone who had Aplastic Anemia.

Given that you were fighting some big viruses post-transplant with a very immature immune system, I wonder if your immune system went haywire, similar to virus-induced aplastic anemia??? Are you still on cyclosporine?

Do you get any boost immediately after your platelet transfusions or is it pretty minimal?

You and your doctors are in my thoughts and prayers.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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