Quote:
Originally Posted by cheri
And if I had a nickle for everyone who said: "But you don't look sick"....I'd be sitting on a BIG pile of nickles!
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That's true for a lot of MDS patients. People they meet may not realize the seriousness of an "invisible" disease and can't easily appreciate what patients go through. For example, they might treat a coworker's fatigue as laziness.
However, there's a bright side too: With MDS you get to decide who to share your health status with. You can explain the details to people close to you, or people who ought to know (that coworker who thinks you are lazy), but strangers will treat you just like everyone else. There are probably people with birth defects or diseases like psoriasis who wish they had a nickle for everyone whose first impression of them was "sick person".
There's just no good way to be sick!