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Old Mon May 24, 2010, 09:09 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I too cannot believe your hematologist is jumping to a diagnosis at this point. My husband, who is in partial remission from SAA continues to have a high MCV and never once did either of his hematologist suggest he had or has MDS base on the MCV.

IMO, I would get a second opinion before preceding with BMB at this point.

Like Zoe said, get a copy of all your blood work, including your tests for B12 and folate. Hopefully they also check your iron levels, copper, zinc and B6. A low normal B12 does not rule out a B12 deficiency. More current thinking on B12 is that a normal level is at least 500. Many docs still go think that a B12 level of 200 - 400 are good. And to really rule out a B12, they should run an MMA and homocystein blood serum.

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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