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Old Mon May 28, 2012, 09:47 PM
donna j. donna j. is offline
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Join Date: Sep 2011
Location: long island, new york
Posts: 110
how and what to eat with GI GVHD

Hi all,
I am 120 days post transplant and dealing with low counts (neutropenic too)following CMV. My digestive tract including esophogus to colon has some GVHD. I am finding fewer and fewer foods to eat and smaller amounts. I sometimes have an appetite but worry about the follow up discomfort. I take Maalox, and pantoprazole. Any suggestions what to try as I am losing weight and sure I am not getting proper nutrition eating mostly ginger snaps!

thanks,

Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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