Thread: New drug, INCB47986, for anemia
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Old Fri Apr 18, 2014, 12:44 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by Birgitta-A View Post
Hi triumphe64,
You know I googled the drug and they started to try to treat inflammation in RA patients and then anemia in MDS. PRCA is so uncommon that they probably wait with testing in these patients. As soon as the drug is approved (that will take years) doctors can prescribe it off record.
Kind regards
Birgitta-A
Birgitta,
I enjoy your posts.

I have had great success with Danazol. I'm sure it is off label also.
I'm sure some of my peers may benefit from an alternative when it becomes available.

Thank you.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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