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Hi Mseth,
I hope the EPO + G-csf works for your mom. If i remember correctly, good to have the EPO test first as if the serum-EPO is more than 500, then it is less effective for EPO.
She is doing fine with 6 tables/day now. If you are worry, you can try with 3 tables a day first and slowly increase it to 4, 5 and 6 in a few months time. Just a thought. Actually we are worried as well, this is what we do for my mother. Increase slowly the tablets/day. No side effects from the beginning.
I think there were 3 iron chelation, this is the info i found last year - deferoxamine (Desferal), deferiprone (Ferriprox) and deferasirox (Exjade). The least side effect one is Exjade based on the info i get from the web. We asked the hospital to prescribe Exjade but the hema says it is very expensive compare to Ferriprox, so my mom only getting Ferriprox.
cheers
teo
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015
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