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Old Thu Jan 15, 2015, 04:44 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
I am very sorry to hear of your mom's diagnosis. If your mother has been staged at RAEB2, she should begin treatment pretty quickly Vidaza and Dacogen are common front-line treatments, but a bone marrow transplant is the only known cure for the disease. Depending on your mother's situation, the doctors may try to reduce the amount of MDS cells with Vidaza, Dacogen, or some other chemotherapy drugs and then try transplant.

There are many members on this forum who have been in your mother's situation, some have opted for transplant and done well, others either chose not to seek transplant, were not healthy enough for transplant, or did not have suitable donors and received treatment.

If your mother is in otherwise good health, transplant does represent a good possibility for long-term survival.

I wish you the best of luck in seeking the right solutions for your mother.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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