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Old Fri Jan 16, 2015, 01:01 PM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi Harini,

I too am on this forum for my mother, and I am her daughter.

It's natural to be very emotional and very scared when you hear of this diagnosis. We have all gone through this stage. Over time, you will learn and understand much more, and can ask the doctor relevant questions. You seem to be young, so it may be better for you and your mother to have your brother around initially, for support.

On Vidaza/Dacogen and transplants, I don't have much information, other than what I read here. Maybe you can post this as a separate thread, if anyone is on both Vidaza and Dacogen. I have read of Vidaza or Dacogen, and some have had great response, with either, with blasts coming down and counts returning to normal. There are statistics on average time to response etc, and forum members who have experience with these treatments will be able to give you this information more accurately.

It is NOT a hopeless situation, so don't lose hope.

Wish you and your mother the very best.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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