Angela,
I can appreciate how overwhelming it feels. So many MDS patients had no idea they were seriously ill until they got this diagnosis. Even with your symptoms you probably weren't expecting to be broadsided this way.
Have you met with an MDS specialist at NIH or been referred to one? You should make sure you've discussed all of your options with an MDS expert. Get the
free MDS booklets from the
Aplastic Anemia & MDS International Foundation (AA&MDSIF) so you can learn as much as you can about this disease.
Like you, my wife was 41 when diagnosed and did not have a sibling match. You can read her story
here. She made it through her matched-unrelated-donor transplant and so can you.