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Old Tue Mar 13, 2018, 12:30 PM
KatailS KatailS is offline
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Join Date: Apr 2016
Location: Avon, CT
Posts: 41
Checking in . . .

Hi David!
Good to hear from you and to hear that you are fairly stable.... tho sorry to hear about the flu doubleheader. I am doing much the same. My numbers remain below ‘normal’, but pretty stable. I have my bloodwork every 3-4 months and get to visit with my hematologist. My next bloodwork is coming up in April.
My official label is moderate idiopathic aplastic anemia with a small PNH clone. I do have very short telomeres as well, but no genetic predisposition to my diagnosis. Been up to Dana Farber a couple times and am comfortable with the doctors there if I ever need them. No treatment, just a watch and wait. I am living my life and staying as healthy as I can by eating right and exercising. So, just like you.... same is good 😊
Keep in touch.... and keep living life to the fullest!
Kathie
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Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
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