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pediatric/PNH
Hi Linda-
I would highly recommend that you contact Dr. Jarek Maciejewski at Cleveland Clinic. Although he is not pediatric, he has ample experience with AA and PNH. He is acting as our consulting doc and we think he is great.
His associate Greg Plautz is the pediatric guy who is also great. Maybe starting with Plautz would be your best bet.
Maciejewski: (216)445-5962
Plautz: (216)444-5517
Wendy/mom to Grant age 15 1/2
dx aa 12/4/98
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