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Old Mon Sep 27, 2010, 02:18 PM
Ryan Jay Ryan Jay is offline
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Join Date: Aug 2010
Location: Massachusetts
Posts: 106
When did "response" become the "R" word?

Hi everyone,

Well, it's been about 45 days since my ATG treatment and I've been doing well so far (knock on wood). Despite feeling like I had been electrocuted or hit in the head with a baseball bat for about a week after the treatment, I pulled out of it okay.

Things have been a cookin' on my CBCs, but my doctor has been unwilling to call it a "response" so far. I'm wondering if he's just very conservative or it's just too early.

Here are my recent counts over the last month:

WBCs:

1.4, 1.5, 1.6, 2.0, 2.2, 2.7 (Today! Yay!)

Platelets: (I used my nadirs and threw out the post transfusion figures which would put my counts in the mid to high 20s)

3000, 5000, 7000, 9,000, 12,000 (Today.)

ANCs:

320, 440, 500, 660, 680, 790, 945 (Today!!!! Yay!!!)

HGB/HCT: bobble around 7.8/22 with transfusions every week. Although I've gone two weeks since the last transfusion. So, the gaps between transfusions are widening.

Maybe I'm superstitious, but my counts started moving up as soon as I started wearing my "Bravery" bracelet.

Anyway, I just wanted to share this with you guys. Keep up the good fight!!!

Ryan
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Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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