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Old Fri May 30, 2014, 10:14 AM
TonyBegg TonyBegg is offline
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Join Date: Jul 2013
Location: Santa Fe, NM
Posts: 25
After the ATG - what happens next

Sorry if this already answered somewhere. Karin has 95% PNH clone and severe AA. Today is 4th and last day of horse ATG and we are wondering what the next months look like. She will continue the cylosporine for up to 6 months. She also started Eculizumab last week. Her WBC are now virtually zero and she is on ant-viral, antibiotics, anti-fungal in the hospital. Will the cyclosporine keep the WBC down and will she need all the aniti-this and thats while she is on it? Presumably at some point her bone marrow reboots. We know the docs will answer some of these questions on discharge (scheduled for Sunday) but maybe your experience can help us frame the questions. Any help appreciated. Thanks!
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