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Old Fri Jun 13, 2008, 03:57 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Bone marrow

Hi Chirley,
You know our disease is called MDS because it is not really one disease but many different diseases. Syndrome refers to the association of several clinically recognizable symptoms.

I still think you should have more frequent transfusions – you know your heart does not like a HGB of 60 something . I have a “lower limit” of 95 though I had 70 when I got my dx and only felt shortness of breath in long staircases and steep hills.

Congratulation to your good platelet count and well functioning white blood cells . Your bone marrow does not mind chocolate so you should of cause use chocolate to keep you going .
Kind regards
Birgitta-A
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