[Ruth Cuadra]

Hi, Lollie.

Welcome to Marrowforums. I hope you'll free to post about your experiences with MDS and ask any questions you may have. I live in a Los Angeles and even in this big city, it's very rare to meet another MDS patient.

And, Zoe, I don't think it's silly to be bothered that people think you should be treated and move on. We are all taught to believe that doctors will make us better. Not so with bone marrow diseases. Often patients can live almost entirely normal lives. Other times, despite the best treatments available, these diseases take their toll. People don't know how to react to someone with a chronic disease who might be up one day and down the next. You may look well so it's easy for people to think you should feel well too. I think a lot of patients grapple with how much to explain to others about their MDS and when to just let it slide.

Regards,
Ruth