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Birgitta-
If Grant had MDS we would already be trying it. Waiting for Eltrombopag could mean waiting many months more and time is not on our side. To my uneducated eye, it appears that the higher doses of Romiplostim are the ones related to more adverse events. ANY increase in platelet count that would get Grant off of platelet transfusions would be GOLDEN for us.
Everything we have ever tried with this disease has had risk and yes, I understand your concerns. The state he is in currently appears to have been triggered by the mycophenolate that we tried back at the end of 2005. It always has been and always will be a matter of considering whether the next treatment will improve his health or add new problems which is why we are still NOT choosing transplant at this point.
Wendy/mom to Grant
dx 12/4/98 AA
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