That does not seem like a low dose to me....Here's the dosing information so you can see that 2000 mg/day seems high. Also, Exjade is usually taken only 1x/day. I would ask him why he's not following the recommended dosing/admin schedule. Many side effects are dose related. He should monitor your liver and kidney function weekly for the first month, especially at that dose.
Also, much depends on how frequent your transfusions are. You may not need a maximum dose if you're getter red cells once a month versus weekly.
http://www.rxlist.com/cgi/generic/exjade_ids.htm
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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