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Old Sat Dec 6, 2014, 03:37 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Low risk MDS with declining numbers

Hi - I've never posted before but have found the forums enormously helpful. I am 55 and was diagnosed with low risk MDS slightly over two years ago. Have been watching and waiting since, but in the last several months, after a bout of diverticulitis - my HG has declined to as low as 6 and I've needed several transfusions. We are planning to start lower intensity Vidaza treatment (5 days instead of 7) - and I am very nervous and not especially optimistic. If that fails they are thinking transplant. What should I expect from Vidaza - am I missing something or does it only work in a small percentage of patients? Anyone else go this route? Anything other thoughts/ideas? Thanks.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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