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Old Sun Dec 7, 2014, 12:29 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi PaulS,

Do you have significant dysplasia in multiple lines (over 10% in each blood line)? What is your bone marrow cellularity? Since you are thinking there may be an immune component to your condition, I would seek a second opinion before beginning Vidaza. With your young-for-MDS age and a MDS-RA subtype, immune suppression may be a more appropriate treatment to consider.

Also, drops in RBCs and Platelets while sick are expected. Look to see that they come back up when you are recovered!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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