Hi PaulS,
Do you have significant dysplasia in multiple lines (over 10% in each blood line)? What is your bone marrow cellularity? Since you are thinking there may be an immune component to your condition, I would seek a second opinion before beginning Vidaza. With your young-for-MDS age and a MDS-RA subtype, immune suppression may be a more appropriate treatment to consider.
Also, drops in RBCs and Platelets while sick are expected. Look to see that they come back up when you are recovered!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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