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Old Fri May 22, 2015, 08:01 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi - glad to hear your counts are heading in the right direction - I hope you continue to do well.

Thanks for asking - Unfortunately, the Vidaza didn't seem to do to much - and my bone marrow biopsy showed a genetic abnormality for the first time - and patchy but elevated blasts - as a consequence they want to transplant me while I'm still relatively healthy - almost weekly transfusions are getting depressing.

I'm talking to a couple of transplant doctors with slightly different techniques - and will make a decision with my oncologist as to the what she/we feel is the best approach. Good news is my brother is a match - I'll probably start the transplant process - vidaza for five days, chemo and transplant - in several weeks - definitely dreading it - but hopeful that I may be cured and restored to health. My goal is to be skiing by March.

So keep getting better - your perseverance is inspiring!

All the best
paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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