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Sharon
I had the following cycles of Vidaza based on 28 day cycle:
Two treatments of five days
Two treatments of seven days
My sores came back in the 5 day treatment on day 4 or 5 of treatment.
When increased to 7 days the spots did not come back.
I then presented my case to go back to five days because my blood counts were horrible. Neutrophils were gone for three weeks. WBC went down to .5. They came back up above 1.0 after two weeks. Platelets are no longer being generated by my bone marrow; receiving weekly platelet transfusions.
Since I went to Vidaza 5 days, My hemoglobin has held coming up on 21 days.
The spots have come back and are mild compared to the first episodes. Did a second opinion at MDS center of excellence which was close to what we are doing now.
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