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Houston TX
Comunity of hope meetings in Houston for AA,MDS, and PNH pts. These meetings are so helpful! You can find more info on www.aamds.org
We live in the north Houston area. My husband has been dx PNH 10/12 and AA 2/13. Anyone looking to connect or have any questions please feel free to contact us!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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