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I am so glad I found this site because this is all so confusing.
I saw my hematologist/oncologist today .They are trying to get me on Revlimid . My ins. will not pay anything on it , they are checking with the assistance program to see how much they would pay. I thought I would get a prescription, have it filled and start taking pills. Guess it has to come from specialty pharmacy if I can afford it .Nothing is easy with this disease.
If I can't get revlimid he will do the ATG again ( hope ins. will pay for 2nd treatment) while they look for marrow donor .
Not sure what all has to match in donor, I know it tissue match not blood type.( I am O neg. with antibodies ).
Thanks for letting me vent. I just want to feel better. I ache all over and take hydrocodone , which Dr wants me to cut back on.
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