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Old Mon Apr 30, 2012, 01:03 PM
Neel Neel is offline
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Join Date: Dec 2010
Location: delhi india
Posts: 73
starting decetabine

My father is still in hospital since 14 april, stil having fever even after daily injection of antibiotics. The fevers reaches to 102 and he has to take paracetamol he is taking arnd 4-5 paracetamol in 24 hrs to control the fever.

All cultures are sterile/negative.

Doc saying fever is due to disease progression. We have now/today stopeed thalidomide and revolade as both were not showing any positive effects.

His platelets are the main concern as they are being transfused every alternate day. They every alternate day they drops to 2000-3000.

Doc say that we have reached end of wall and we have to start decitabine now and also not to expect much from decitabine therapy.

Kindly give ur sugestions and experience with decitabibe/dacogen espicially when platelet trasnfusion dependent.

Can decitabine be started when he is having fever ?

Also instead of dacogen, doctor will be using decitex which is decitabine (generic version of dacogen).

We are really very afraid at this point.

Neel
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Father age 64 diagnosed with MDS RAEB-2, with 15%-18% blasts in October 2010. Only had blood and platelet transfusions. Ayurvedic treatment which showed result for arnd 5 months. Started Tahlidomide 100 mg started on 22 nd April 2011. Revolade 50 mg started on 2 nd april 2012.

Last edited by Neel : Mon Apr 30, 2012 at 11:04 PM.
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