Thread: IVIG for MDS
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Old Mon May 28, 2018, 01:36 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Ashley,

I am not sure that I have ever heard of IVIG being utilized for treatment of MDS. It could potentially be used to boost immunity if you have low and/or defective white blood cells, but it generally would not have an impact on other cell lines.

It is a good question to ask the doctor though.

If I recall correctly, hypo-mds can respond to immune suppression (which would be opposite of IVIG) like AA can and may be another option to discuss with the doctor, along with transplant, especially since you are so young.

I am not sure where you are being treated, but getting a second opinion and concurrence of opinion on how to go forward in your situation might be a really good choice to help you set a direction that you are comfortable with.

If you are not already with an MDS Center of Excellence, you may wish to seek one out.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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