Thread: IVIG for MDS
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Old Fri Jun 1, 2018, 02:38 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Ashley

I have IVIG every 4-5 weeks. That's because at the time I was diagnosed with MDS I was also diagnosed with hypogammaglobulinaemia. IVIG doesn't make any difference to my blood counts, except for globulins of course, which it keeps at pretty much normal levels. What IVIG does do is help me to resist infections because my white cell count averages around 1.5, my neutrophils are always less than 1.0, and lymphocytes sit around 0.4.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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