Thread: and now?
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  #10  
Old Wed Nov 10, 2010, 12:52 PM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
Wilbur, I hate to hijack Rui's thread, but I have several questions I'd like to ask about your treatment. Perhaps if you start another thread, you can address them there.

I'm curious about the timeline of the plasmapheresis and the ATG/cyclo, i.e. which came first and why, and what changed your diagnosis. If the PP came first, and your Plts got that high, I'm wondering what made them decide to do ATG, unless your red and white counts were dangerously low. If that is the case, and if removing the antibodies from your blood was that effective in calming the autoimmune attack that was causing your Plts to be low, why would it not also be just as effective on the other two lines? On the other hand, if the ATG came first, then what made them decide to do PP, and how do you know it is the PP and not the ATG that has caused the rise?
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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