View Single Post
  #14  
Old Mon Apr 2, 2012, 05:39 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by misscakes View Post
My doctor told me I would be on the cyclosporine for six months but couldnt tell me why I supposed to take it. The side effects were making my quality of life horrible so I just woke up one morning and said the heck with it and havent taken them since. While I was on it my numbers stayed in the toilet and now two weeks without it they've jumped so I'm gonna continue to not take it.
What's worse for your quality of life, AA or cyclosporine side effects?
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote